The patient voice and perspective is a vital piece of the health-care puzzle, and the patient voice is well-represented at CHEST 2016! Several patient advocacy groups will attend and exhibit at our annual meeting. Learn more about four organizations you’ll find this year.
Allergy & Asthma Network
Allergy & Asthma Network, the nation’s leading patient education and advocacy organization for people with allergy and asthma, is dedicated to ending needless death and suffering due to asthma, allergies, and related conditions.
Allergy & Asthma Network will provide medically accurate, patient friendly resources free of charge including inhaler posters, Living Well With Asthma and Living Well With COPD guides co-developed with CHEST Foundation. They will also be happy to share details of how to get involved in their difficult-to-control asthma awareness, Asthma: Take Action. Take Control. campaign in partnership with CHEST Foundation.
Pulmonary Fibrosis Foundation
The Pulmonary Fibrosis Foundation (PFF) mobilizes people and resources to provide access to high-quality care and leads research for a cure so people with pulmonary fibrosis will live longer, healthier lives.
The PFF is excited to exhibit at the CHEST 2016 once again. Stop by the PFF booth to pick up the PFF’s recently updated and expanded resources for pulmonary fibrosis patients, caregivers, and clinicians. Materials include:
- Pulmonary Fibrosis Information Guide (English and Spanish)
- PFF Physician Notepad (English and Spanish)
- PFF Clinic Poster (English and Spanish)
- ILD Physician Pocket Card (English)
- PFF-branded pens, Breathe Bracelets, and magnets
More information will also be available on ordering materials to distribute at medical centers or clinics.
Pulmonary Hypertension Association
The Pulmonary Hypertension Association (PHA) is a nonprofit health organization serving patients with pulmonary hypertension (PH), their families, and the medical professionals who treat them. Its mission is to extend and improve the lives of those affected by PH. Its vision is a world without PH, empowered by hope. PHA provides for the PH community through support, education, research, advocacy, and awareness.
This year at the PHA booth, health-care providers can find information on the PHA Online University, which houses more than 500 educational materials and resources related to the treatment and diagnosis of pulmonary hypertension; the latest issues of Advances in Pulmonary Hypertension, PHA’s quarterly medical journal that provides in-depth analyses of the impact of new findings in peer-reviewed publications; and many other educational resources for their patients.
Foundation for Sarcoidosis Research
The Foundation for Sarcoidosis Research (FSR) is dedicated to finding a cure for sarcoidosis and to improving care for patients with the disease. Since its establishment in 2000, FSR has funded nearly $1 million in sarcoidosis-specific research.
FSR has partnered with CHEST Foundation the past two years for the Seek Answers. Inspire Results. campaign to encourage people living with sarcoidosis to take a proactive role in their treatment plan. You can find more materials on the campaign and understanding sarcoidosis at their booth.
CHEST 2016 will offer a variety of educational options to keep you up to date on the latest information in pulmonary, critical care, and sleep medicine. From October 22 to 26, you’ll find these patient advocacy groups, as well as many more organizations, in the Exhibit Hall at the Los Angeles Convention Center. So stop on by!